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Global Harmonisation of Health Data for Research: pipe dream or possible?

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If you have a question about this talk, please contact Mr Matt Jordan.

On Friday 30 November, Prof. Bartha Knoppers will present highlights from from a special issue of Human Genetics on international Genomic Data Sharing (published in August 2018). Led by the Centre for Genomics and Policy at McGill University, the special issue on Genomic Data Sharing points to the great potential for genomic data in revolutionising healthcare. Utilising critical insights from seven jurisdictions on questions of international data linkage and harmonisation, Prof. Knoppers will reflect on whether harmonisation is an impossible dream.

An alumnus of Trinity College, University of Cambridge, Prof. Knoppers is an international authority on the legal and ethical issues surrounding genomic technology. A list of Professor Knoppers’ publications can be found here. Amongst other distinctions, she is the Director of the Centre of Genomics and Policy, McGill University; the Canada Research Chair in Law and Medicine 2001; and the holder of Chaire d’excellence Pierre Fermat (France) (2006-2008).

The talk will take place in the Moot Court Room at the Faculty of Law, from 12.30 – 14.00. Please register at https://genomicdatasharing.eventbrite.co.uk. Registration is free but required, as spaces are limited.

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